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Siblings

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Boy pens letter to reveal need for respite care (Aug 24, 2010)

My name is Stephen and I’m a 14-year-old boy living with a sister who suffers from autism and ADHD.  Life is very hard having a sister with special needs – it’s all about Lorna. 

The mornings are always a struggle in our house, as it’s Lorna’s way or no way. She dictates when she gets up, how she gets washed, and even the way I eat my breakfast. If I go against Lorna in the slightest way, all hell will break loose. 

Cutbacks
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Possible Early Glimpse of Autism's Impact on Older Siblings (ScienceDaily, 8/Mar/10)

ScienceDaily (Mar. 8, 2010) — A new study suggests a trend toward developing hyperactivity among typically developing elementary-school-aged siblings of autistic preschoolers and supports the notion that mothers of young, autistic children experience more depression and stress than mothers with typically developing children.

Siblings with ball
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Wanted: Participants for Study on Impact of challenging behaviour on siblings

My name is Doireann O’Brien. I am a postgraduate student in the School of Education, Queens University Belfast. I am studying an MSc in Autistic Spectrum Disorders. My dissertation project will be an examination of the perception and experience of parents/siblings of people who have been diagnosed with an Autistic Spectrum Disorder. The choice for this project reflects my own experience as a sibling of a person with Autistic Spectrum Disorders and the lack of research in this important area.

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Helping Siblings Understand Autism and Encouraging Positive Relationships

This booklet includes chapters on:

1. Understanding My Sibling’s Disability
2. My Perspective as a Sibling
3. Developmental Stages
4. Talking to Mom and Dad
5. Strategies for Developing Positive Relationships
6. Activities to Encourage Communication
7. Super Parent – Exit Stage Left

[Society for Treatment of ASD, Calgary, 2002: http://www.sta-ab.com ]

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National Parents and Siblings Allicance (Ireland)

"The NPSA is an independent voice for parents and other family members of people with intellectual disability and/or autism and ...

- Is run by family members for family members
- Campaigns for change by educating and informing societal attitudes towards intellectual disability and autism
- Advises and supports parents and families of people with an intellectual disability and autism
- Lobbies for appropriate legislative change.".