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Carers

Aine Roddy's picture

National Survey on the Costs of Autism (3rd Oct 2015)

Dear All,

As you are fully aware there is a great need for invest in autism services and supports in Ireland. To inform and progress, it is vital that we can produce evidenced based research on
the economic impact of autism spectrum disorders for families and the need for appropriate services and supports to address the needs of children and teenagers on the spectrum Ireland.

ASD-National-Survey-Oct2015
admin's picture

Feedback wanted: Inclusion Ireland election manifesto (July, 2015)

Dear all

It probably has not escaped your attention that a general election is coming in the next 9 months or so. Inclusion Ireland and partners are hoping to have some disability issues in the manifesto’s of the political parties. Hopefully, some will then make it into the program for government. We have developed a draft manifesto. Please take a few minutes to look at it and let us know if we are on the right track or are missing something very important. Forward this to any of your contacts.

admin's picture

Stories for a Autism documententary (15/9/14)

I'm writing to you from an independent television production company based in Dublin. We have been commissioned by RTE to research and develop an idea we submitted to them on the subject of autism. Our pitch to them was to explore
the world of autism through the experiences of a number of children and young adults and their families in an attempt to see the world from their perspective. We would also like to address various issues relating to this
spectrum via experts in their field.

We feel there hasn't been much Irish television devoted to this subject so we'd like to change this. I have an added interest because I trained and worked as a Special Ed. Montessori teacher years ago and I also have a special needs nephew who displays some autistic characteristics.

Autism Boy and Bubbles
admin's picture

Invitation to Info Sessions - HSE New Directions (Sept 2014)

16 Sep 2014 00:00
Europe/Dublin

New Directions – Personal Support Services for People with Disabilities was published by the HSE in 2012. This document sets out the future vision for the provision of day services to people with Intellectual Disability, Physical and Sensory Disabilities and Autism that have a requirement for a HSE funded day service. 


You are invited to attend an Information Session which will give details of the Draft Interim Standards that have been developed to support the delivery of the personal support services for people with disabilities contained in New Directions. 
HSE Logo
admin's picture

National Conference of Self-Advocates 29th May 2014

29 May 2014 10:30
Europe/Dublin
The NATIONAL PLATFORM OF SELF- ADVOCATES invite you to a National Conference on STANDING UP- SPEAKING OUT on Thursday 29th May 2014, 10.30am - 4.00pm at the Conference Centre in Croke Park Stadium - Dublin
We are an Advocacy group of people with disabilities from all around Ireland.  Come to our first conference and meet people also interested in standing up and speaking out about disability rights. Place’s limited for 2 or 3 people from each group or service (including support staff).
There will be elections for the new Committee.  Please apply if you think you may want to be on the new Committee (see forms attached).
Please register by 15th May 2014 to:  The National Platform of Self- Advocates, Centre for Disability and Policy, NUI Galway, Galway Ireland.
Disability Rights
Arlene's picture

Toilet training your child with autism spectrum disorder (ASD)?

Has your child experienced toilet training difficulties? Or has toileting been successful for your child? 

The Irish Centre for Autism and Neurodevelopmental Research (ICAN) in National University of Ireland, Galway are interested in hearing about your experiences with toileting a child or adolescent aged 5 to 17 years with autism. 

We are interested in how being successfully toilet trained or not being toilet trained affects a child’s sleep, gastrointestinal symptoms, adaptive behaviour and quality of life. 

Even if your child doesn’t have these symptoms, we can still learn a lot from your information on why some children have these symptoms and others do not. 

Please click below to learn more.

https://docs.google.com/forms/d/1v1mOBFl5N9ll2dDFLftNWJPNeb-xDdeAX4gjJ-z...

Kady Francis's picture

Toileting Problems in Autism Spectrum Disorder (NUIG study 2013/2014)

Dear parent/carer,

My name is Kady Francis, I am currently a student of Psychology at the National University of Ireland Galway. I am conducting research into the area of toileting problems in children and adolescents with Autism Spectrum Disorder, and their relationship to sleep, quality of life, adaptive functioning and language.

I have a great interest in this topic and believe that it is an area which is extremely under researched.
I am hoping to recruit parents/carers of children with ASD aged between 4-17 years.

Participation requires filling out questionnaires about your child's specific behaviours. Questionnaires will be available in hardcopy and via email, depending on what suits parents best.

If you think you may be interested please contact me by email as soon as possible with the age of your child and I will send you further details. My email is k.francis2@nuigalway.ie

Herbie1958's picture

Research/Survey on Positive Psychology (NUIG, April 2013)

Dear parent/carer

My name is Martina Herbert, I am currently studying for a Masters in Health Psychology in NUIG.  Having worked as a nurse for a long time I am interested in studying ways to increase well-being and reduce stress for carers/parents and I am looking for a number of people to take part in a study.

Questions and Answers
admin's picture

Special Needs Parents Association Conference (6/April/2013)

6 Apr 2013
Europe/Dublin

Dear All,

We are contacting you to inform you of the Association's forthcoming Conference for parents 'Looking Ahead-Making the Change'
in the Sheraton Hotel, Athlone on Saturday 6th April and it would be
greatly appreciated if you would share details with parents and networks
as registration is about to close.
Guest Speakers include;
  • Lisa Domican, Social Entrepreneur, creator of communication aid 'Grace App'.
  • Dr. David J Carey, Consultant Psychologist, Educational Consultant
SNPA Conference 2013
cbeirne's picture

Domicilary Care Allowance

30 Oct 2012 21:22
5 Nov 2012 09:00
Europe/Dublin

Catherine Beirne has been invited to the Sligo forum to discuss DCA (domicilary care allowance) on behalf of parents of kids with autism.

Please send in your views and comments. via post here or pm Catherine via facebook.

No names will be used.

This is our opportunity to be heard.

admin's picture

Volunteers Needed - Sligo Surf Camp - August 2012

13 Aug 2012 10:00
17 Aug 2012 16:00
Europe/Dublin

Volunteers Needed For


SLIGO SURF CAMP FOR YOUNG PEOPLE WITH AUTISM, 2012


Where:Streedagh, Co. Sligo

When: Monday 13th –  Friday 17th August 2012

Contacts: 

Sligo Surf-2-Heal 2012 - volunteers needed
Becky Thomas's picture

Carers day - Carrigallen Cornmill Theatre 10am - 3pm

Friday 29th June 2012  No Admission fee – Lunch Included

Advocacy -  Rosaleen Doonan. Carers Association, Sligo,
Leitrim, Donegal & West Cavan

Advocay worker for Special needs
Leitrim, Ms Elaine Morriss will be attending the carers day to tell everyone
what work she does on behalf of special needs

Inspirational Art and Craft ideas
for Children with Julie Smith and Noellee Lockhart

Sculpting with Martin Doyle.
Experience the Art of Clay Modelling with Renowned ‘Crutu’ Sculpture

Understanding Behaviours - The
benefits of Art/Craft and Animal Therapy with Becky Thomas.

Relaxation and Yoga with Julie
Smith

Jean Rogers, Ck-on shn and Kate
Mason from the Uk will be in attendance talking about HANDLE methods 

ElaineMcH's picture

ABA schools change to special school status. Research participants wanted.

Dear ABA tutors & parents,
My name is Elaine Mc Hugh, I studied psychology in NUI Galway and I’m currently taking part in a masters in educational research with the University of Gothenburg, Sweden.
I’m now in the process of conducting research which investigates the change of pilot ABA schools in Ireland to special school status. What I am most interested in is your perceptions of the reforms and attitudes towards different types of treatment options. I was wondering if you would be interested in being interviewed as part of this research. I am looking for people who have been directly impacted by these changes. Your personal information (and information about the associated school) will be confidential. 
Please contact me if you are interested in taking part or if you have any questions. 
admin's picture

PWDI - Autism Awareness Event, Radisson, Athlone - 5/Dec/2011

5 Dec 2011 10:00
5 Dec 2011 13:00
Europe/Dublin

Autism Awareness,Free Information Event

The Radisson Hotel, Athlone

Monday 5th December, 2011, 10:00AM - 1:00PM


There will be a number of guest speakers from various centers in Co. Westmeath. Lunch will be provided, RSVP to pwdiwestmeath@gmail.com or Ring us on (090) 6470044

PWDI_Autism_Awareness_Athlone_5_Dec_2011.jpg
sarah_c_'s picture

SNA Cutbacks 2011

Hi! I'm a final year student doing a research project on the effects of the governmental cutbacks on Special Needs Children and SNAs in Irish primary schools.

Could anybody give me any tips/pointers/personal accounts or opinions? Anything would be very much appreciated!

Thank you

Bernie Dowling's picture

10k Walk in aid of Roscommon Carers - Ballymoe (31/10/2011)

31 Oct 2011 12:30
Europe/Dublin

Dodge city - Round ‘em up (10k walk)

In aid of Roscommon Carers Association

 

10k Walk takes place on Monday 31st Oct 2011 at 1pm

To Register:

Time:  12.30 – 1.00 pm

Where: The lone star hotel (eileen’s), Ballymoe, Co Roscommon.

Fee: €10 Entry

Carers Association Roscommon
admin's picture

Carers Association urges carers to join campaign (OceanFM, 7/6/2011)

The Carers Association in Sligo is urging carers across the North West
to join them in the fight for a better life for those in the profession. There are currently over 2400 carers in Sligo.

The organisation has unveiled its "One Voice" Campaign in the wake of
last week's Prime Time Investigates programme, which conducted extensive research into the effects of cuts on family carers.  The programme found that 82 percent of carers have been affected by cutbacks in State services.

Carers Association Ireland Logo
Bernie Dowling's picture

Carers Association Roscommon, Barbecque June 12th 2011/ DayTrip June 19th 2011

12 Jun 2011 14:00
12 Jun 2011 17:00
Europe/Dublin

The Carers Association Roscommon has organized two Social Events for Carers Week, 12th-19th June 2011

 

Carers Association Roscommon
admin's picture

Continence Information Day, Ballybofey (16/4/2011)

16 Apr 2011 09:30
Europe/Dublin

 

  

 

Continence Information Day

Organised by Spina Bifida Hydrocephalus Ireland, Donegal Branch.

Jackson's Hotel, Ballybofey, Co. Donegal, Saturday 16th April 2011

 

A unique opportunity for individuals, families, carers and professionals to learn and share information regarding continence issues.

 9.30am Registration

10.00am Frances Halligan,

Continence Advisor Our Lady’s Children’s Hospital Crumlin

Urodymanic Department & Consultant to SBHI

12.30pm Lunch

1.30pm Frances McGinley

Continence Advisor for Community Services Co. Donegal

Spina Bifida Hydrocephalus Donegal Branch Logo
Bernie Dowling's picture

Carers Meet the Candidates Evening, Roscommon South/ Leitrim 17/Feb/2011

17 Feb 2011 20:00
Europe/Dublin

The Carers Association Roscommon has organised a Carers Meet the Candidates Evening for Carers from the Roscommon South/ Leitrim Constituency

All Candidates have been invited, and have indicated that they will be in Attendance:

Date: - Thursday 17th February, 2011, 08.00pm

Venue: - Hannon's Hotel Roscommon

This evening is for you if you are a Carer/ perhaps you were a Carer don’t forget you might be a Carer in the future, its vital that the rights and entitlements of Carers are on the table of Government at all times. 

We all are at some stage visited with the role of Caring. 

Carers Association Roscommon

Tullamore Gospel Choir Fundraiser in aid of The Carers Association (Cancelled)

24 Nov 2010 20:00
24 Nov 2010 23:59
Europe/Dublin
SAVE  

The Carers Association wishes to apologise to all who their supporters for the Cancellation of The Tullamore Gospel Choir Concert which was due to take place in the Sacred Heart Church Roscommon on Wednesday 24th November at 8pm. Cancellation is due to the recent turn of events in the current economic climate.  Refunds on tickets sold will be available at the outlets where purchased. We apologise for any inconvenience caused.

The choir was costing Euro2000 for the night and only 50 tickets had been sold. I know I would have got more people on the night but it still probably would not have brought in enough to pay the choir.

Apologies again to those who hoped to attend.

Bernie Dowling
Carers Association Roscommon

Bernie Dowling's picture

Carers Roscommon Support Meetings, February 2010

24 Feb 2010 14:30
25 Feb 2010 10:00
Europe/Dublin

Roscommon Carers Association, February Support Group Meetings

Venue: Prince of Wales Hotel, ATHLONE
Date: Wednesday 24th February 2.30pm
Guest Speaker from DSFA Rights & Entitlements

Venue: Spells Pub, BALLAGHADERREN
Date: Thursday 25th February at 2pm
Nicola from HSF Health Plan better known as the Hospital Saturday Fund

cbeirne's picture

Carers not impressed by Budget cuts in welfare (Sligo Champion, 30/12/09)

Sligo Champion, Wednesday December 30 2009

Family carers across Sligo are outraged and bitterly disappointed that the Government has introduced a blanket 3.9% cut to social welfare payments to all carers. This equates to a reduction of €8.50 per week or €442 per annum for carers in receipt of the carers allowance, they say.

"Family carers are the only social welfare recipients who have to work for their payment by providing full time care in the home to older people, those sick and disabled and have already suffered a 2% decrease in welfare payments due to the abolishment of the Christmas bonus this year.

Cutbacks
admin's picture

Male Carers Celebrated [Fermanagh Herald, 2/12/09]

Fermanagh Herald, 2nd December 2009

It was a night of great food, fun and laughter, when a major male carers' celebration event entitled "What About Me?" was held at the Erne Dynasty Restaurant in Enniskillen recently.

The event, which was organised by local social enterprise Me Unltd, in partnership with Positive Futures and the Western Health and Social Care Trust, was well attended with over 60 male carers and their families attending.

admin's picture

Massive rise in number of autistic carers denied grants

PARENTS of autistic children claim there has been a massive increase in the numbers being refused a vital home care allowance since the scheme was taken over by the Department of Social and Family Affairs.

Cutbacks



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